Hi, I would like to thank you for putting up this blog. My girlfriend has the same condition. We found out when we were still in high school. It has been a hard road for her and I. The doctors have told her the same thing about working out and her eating habits. Weight watchers has helped and we have been going to the gym everyday together but Sundays.. But, I just wanted to thank you for putting up this video and giving me an outsiders perspective on this.. Good luck with everything and god bless... Manolo